Dementia from the Inside

Author: Jennifer Bute
Publisher: SPCK
ISBN: 0281080704
Category : Biography & Autobiography
Languages : en
Pages : 131

Book Description
‘Many assume that living with dementia is one long term steady decline. Jennifer’s insightful book debunks that myth.’ – Jeremy Hughes, Chief Executive, Alzheimer's Society Jennifer Bute was a highly qualified senior doctor in a large clinical practice, whose patients included those with dementia. Then she began to notice symptoms in herself. She was finally given a diagnosis of Young Onset Dementia in 2009. After resigning as a GP, she resolved to explore what could be done to slow the progress of dementia. The aim of this practical book is to help people who are living with dementia and to give hope to those who are with them on the dementia journey. Jennifer believes that her dementia is an opportunity as well as a challenge. Her important insights are that the person ‘inside’ remains and can be reached, even when masked by the condition, and that spirituality rises as cognition becomes limited. ‘The observant physician shines through in Dr Bute's book, while her practical advice reveals the resourcefulness of an inventor. Alzheimer’s disease has surely met one of its toughest ever adversaries!’ – Peter Garrard, Professor of Neurology, University of London

Inside the Dementia Epidemic

Author: Martha Stettinius
Publisher: Dundee-Lakemont Press
ISBN: 0984932623
Category : Biography & Autobiography
Languages : en
Pages : 400

Book Description
One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves a compelling story of her long journey caregiving for her demented mother with a broad exploration of the causes of dementia, means of treating it, and hopes for preventing it. Her greatest gift to readers is that of optimism that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring. Includes appendices on dementia research; source notes; resources for caregivers; and an index.

Alzheimer's from the Inside Out

Author: Richard Taylor
Publisher:
ISBN:
Category : Family & Relationships
Languages : en
Pages : 292

Book Description
Receiving a diagnosis of Alzheimer's disease profoundly alters lives and creates endless uncertainty about the future. How does a person cope with such a life-changing discovery? What are the hopes and fears of someone living with this disease? How does he want to be treated? How does he feel as the disease alters his brain, his relationships, and ultimately himself? Richard Taylor provides illuminating responses to these and many other questions in this collection of provocative essays. Diagnosed with Alzheimer's disease at age 61, the former psychologist courageously shares an account of his slow transformation and deterioration and the growing division between his world and the world of others. With poignant clarity, candor, and even occasional humor, more than 80 brief essays address difficult issues faced by those with Alzheimer's disease, including the loss of independence and personhood unwanted personality shifts communication difficulties changes in relationships with loved ones and friends the declining ability to perform familiar tasks This rare, insightful exploration into the world of individuals with Alzheimer's disease is a captivating read for anyone affected personally or professionally by the devastating disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it.

On Pluto: Inside the Mind of Alzheimer's

Author: Greg O'Brien
Publisher: Good Night books
ISBN: 0991340191
Category : Health & Fitness
Languages : en
Pages : 309

Book Description
This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Alzheimer’s is the sixth leading cause of death in the US—and the only one of these diseases on the rise. More than 5 million Americans have been diagnosed with Alzheimer’s or a related dementia; about 35 million people worldwide. Greg O’Brien, an award-winning investigative reporter, has been diagnosed with early-onset Alzheimer's and is one of those faceless numbers. Acting on long-term memory and skill coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. O’Brien is a master storyteller. His story is naked, wrenching, and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease, and a “how not” to give up!

Inside Alzheimer's

Author: Nancy D. Pearce
Publisher:
ISBN: 9780978829919
Category : Family & Relationships
Languages : en
Pages : 328

Book Description
Tells how dozens of persons with dementia and their sharing of wisdom, humor and life's teachings led the author to the six basic principles of connection: Intend a Connection, Free Yourself of Judgment, Love, Open to Receive Love, Silence and Thankfulness. Original.

On Vanishing

Author: Lynn Casteel Harper
Publisher: Catapult
ISBN: 1948226294
Category : Social Science
Languages : en
Pages : 126

Book Description
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

The Common Sense Guide to Dementia For Clinicians and Caregivers

Author: Anne M. Lipton
Publisher: Springer Science & Business Media
ISBN: 1461441625
Category : Medical
Languages : en
Pages : 218

Book Description
The Common Sense Guide to Dementia for Clinicians and Caregivers provides an easy-to-read, practical, and thoughtful approach to dementia care. Written by two specialists who have cared for thousands of patients with dementia and their families, this ground-breaking title unifies the perspectives of neurology and psychiatry to meet a variety of caregiver needs. It spotlights many real-world concerns not typically covered in standard textbooks, while simultaneously presenting a more detailed medical perspective than typical caregiver manuals. This handy title offers expert guidance for the clinical management of dementia and compassionate support of patients and families. Designed to enhance the physician-caregiver interaction and liberally illustrated with case examples, The Common Sense Guide espouses general principles of dementia care that apply across the stages and spectrum of this illness, including non-Alzheimer's types of dementia, in addition to Alzheimer's disease. Clinicians, family members, and other caregivers will find this volume useful from the moment that symptoms of dementia emerge. The authors place an emphasis on caring for the caregiver as well as the patient. Essential topics include how to find the right clinician, make the most of a doctor's visit, and avert a crisis - or manage one that can't be avoided. Sometimes difficult considerations, such as driving, financial management, legal matters, long-term placement, and end-of-life care, are faced head-on. Tried, true, and time-saving tips are explained in terms of what works - and what doesn't - with regard to clinical evaluation, medications, behavioral measures, and alternate therapies. Medical, nursing, and allied health care professionals will undoubtedly turn to this unique overview as a vital resource and mainstay of clinical dementia care, as well as a valuable recommendation for family caregivers.

Unforgotten

Author: Bianca Brijnath
Publisher: Berghahn Books
ISBN: 1782383557
Category : Social Science
Languages : en
Pages : 239

Book Description
As life expectancy increases in India, the number of people living with dementia will also rise. Yet little is known about how people in India cope with dementia, how relationships and identities change through illness and loss. In addressing this question, this book offers a rich ethnographic account of how middle-class families in urban India care for their relatives with dementia. From the husband who wakes up at 3 am to feed his wife ice-cream to the daughters who gave up employment for seven years to care for their mother with dementia, this book illuminates the local idioms on dementia and aging, the personal experience of care-giving, the functioning of stigma in daily life, and the social and cultural barriers in accessing support.

Four Umbrellas

Author: June Hutton
Publisher: Dundurn
ISBN: 145974781X
Category : Biography & Autobiography
Languages : en
Pages : 224

Book Description
A writing couple searches for answers when Alzheimer's causes one of them to lose the place where stories come from — memory. At the age of fifty-three, Tony walks away from a life of journalism and into an unknown future. June is forty-eight, a writer and teacher, and over the following decade watches as her husband changes — in interests, goals, and behaviour — until Tony has a fall, ending the life they had known. A diagnosis is seven years away, yet the signs of Alzheimer’s are all around. A suitcase Tony packs for a trip is jammed with four umbrellas, a visual symbol of cognitive looping. But how far back do these signs go? The couple starts probing the past and finding answers. This is not an old person’s disease.

The Problem of Alzheimer's

Author: Jason Karlawish
Publisher: St. Martin's Press
ISBN: 1250218748
Category : Health & Fitness
Languages : en
Pages : 269

Book Description
A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.