The Politics of Down Syndrome

Author: Kieron Smith
Publisher: John Hunt Publishing
ISBN: 1846946131
Category : Family & Relationships
Languages : en
Pages : 90

Book Description
Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else? The Politics of Down Syndrome looks at how we got to where we are today, from the racist roots of its identification to the rising number of abortions today. Down syndrome is the most common syndrome in the world, shared by all classes and races, yet it's one we rarely address our feelings about, head on. This book, although direct and questioning, takes a positive view about where we go from here and the opportunity for society to fully enjoy the benefits of being inclusive.

Down's Syndrome Screening and Reproductive Politics

Author: Gareth M. Thomas
Publisher: Routledge
ISBN: 1317338200
Category : Health & Fitness
Languages : en
Pages : 251

Book Description
Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.

From Diagnosis to Legislation

Author: Emmy Oo Daniels
Publisher: Independently Published
ISBN:
Category : Biography & Autobiography
Languages : en
Pages : 0

Book Description
Embark on an inspiring journey of resilience, advocacy, and triumph with "Champion of Inclusion: The Inspirational Story of Spain's First Down Syndrome Parliamentarian María del Mar Galcerán." This compelling biography, titled "From Diagnosis to Legislation," unfolds the extraordinary life of María del Mar Galcerán, who defied societal expectations and became a trailblazer in the world of politics. From the moment of Mar's diagnosis with Down syndrome to her historic entry into Spain's political arena, this book navigates the highs and lows of her remarkable journey. Follow Mar's evolution from a child breaking educational barriers to a passionate advocate shaping legislative change. Discover the pivotal role her parents, Luis and Isabel Galcerán, played in nurturing her potential and spearheading a movement for inclusion. "Champion of Inclusion" goes beyond the legislative achievements, offering an intimate exploration of Mar's personal triumphs and the challenges faced in the public eye. As Spain's first parliamentarian with Down syndrome, Mar encountered skepticism, discrimination, and media scrutiny, yet her unwavering spirit prevailed. This book highlights the enduring impact of Mar's legislative contributions, examining the tangible changes in education, employment, and accessibility that she championed. It delves into the ongoing struggle for societal inclusion, challenging perceptions and paving the way for a more equitable future. María del Mar Galcerán's story is a testament to the transformative power of representation and the resilience required to break down societal barriers. Her legacy extends beyond legislation, inspiring future generations within the Down syndrome community and reshaping the narrative surrounding individuals with developmental differences. "Champion of Inclusion" is a captivating narrative that will leave you inspired, moved, and motivated to challenge your own perceptions. Whether you seek stories of triumph over adversity, advocate for inclusivity, or aspire to make a difference in the world, this biography is a compelling must-read. Join us on a journey from diagnosis to legislation and witness the indomitable spirit of a true champion of inclusion.

Children with Down Syndrome :.

Author: United States. Government Accountability Office
Publisher:
ISBN:
Category :
Languages : en
Pages :

Book Description

Down Syndrome Across the Life Span

Author: Monica Cuskelly
Publisher: John Wiley & Sons
ISBN: 0470777982
Category : Psychology
Languages : en
Pages : 300

Book Description
This book promotes a positive message for people with Down syndrome across the world. Living with Down Syndrome is a positive experience for the majority of children and adults with Down syndrome, and for their families. Of course there are difficulties to be faced, but quality of life, from infancy to old age, is determined more by the quality of healthcare, education and social inclusion offered to individuals, than by the developmental difficulties that are associated with Down syndrome. The aim of this book is to bring the latest information on research and good practice to families, practitioners and policy makers in order improve the services available to individuals with Down syndrome in all countries.

Count Us in

Author: Jason Kingsley
Publisher: Harvest Books
ISBN: 9780151504473
Category : Political Science
Languages : en
Pages : 182

Book Description
Two young Down's syndrome patients discuss their experiences growing up with a developmental disability, and reveal their thoughts and feelings on friendship, school, careers, marriage, independence, and other topics

The Politics of Special Educational Needs

Author: Len Barton
Publisher: Routledge
ISBN:
Category : Education
Languages : en
Pages : 236

Book Description

Children With Down Syndrome

Author: U.s. Government Accountability Office
Publisher:
ISBN: 9781974639762
Category :
Languages : en
Pages : 48

Book Description
"On October 8, 2008, the Prenatally and Postnatally Diagnosed Conditions Awareness Act was signed into law, requiring GAO to submit a report concerning the effectiveness of current health care and family support programs for the families of children with disabilities. In this report, GAO focused on Down syndrome because it is a medical condition that is associated with disabilities and occurs frequently enough to yield a sufficient population size for an analysis.GAO examined (1) what is known about the extent to which children with Down syndrome receive medical care during early childhood and(2) what resources families of children with Down syndrome receive through their health care providers and what barriers families face to using these resources.GAO analyzed fee-for-service claims data from a very large private health insurance company, for the claims representing its experience with one of the largest national employers, and Medicaid claims data from seven states with high Medicaid enrollment and low percentages of enrollees in Medicaid managed care. GAO also interviewed specialists at six prominent Down syndrome clinics and 12 advocacy groups to examine what resources families receive and to identify barriers they face. GAO also analyzed data from the Health..."

Count Us In: Growing Up with Down Syndrome

Author: Mitchell Levitz
Publisher: Turtleback Books
ISBN: 9780613292153
Category : Psychology
Languages : en
Pages : 0

Book Description
This unique and powerful account of life by two young men with Down Syndrome draws from more than 50 conversations between Jason and Mitchell over the course of three years, that touch on such topics as careers, friendships, school, sex, marriage, politics, finances, and independence. A portion of the authors' royalties will be donated to the National Down Syndrome Congress and the National Down Syndrome Society.

Theology and Down Syndrome

Author: Amos Yong
Publisher: Baylor University Press
ISBN: 1602580065
Category : Church work with people with disabilities
Languages : en
Pages : 465

Book Description
"While the struggle for disability rights has transformed secular ethics and public policy, traditional Christian teaching has been slow to account for disability in its theological imagination. Amos Yong crafts both a theology of disability and a theology informed by disability. The result is a Christian theology that not only connects with our present social, medical, and scientific understanding of disability but also one that empowers a set of best practices appropriate to our late modern context"--Publisher description.